Jay Cutler Completes a Pass of Hope to Theo!

Category : Small Miracles

Week in and week out, members of Team Endure to Cure have made a choice to push themselves beyond their perceived limitations to reach the finish line of endurance events of all kinds.  They never ask why they are doing what they do because they know why.

Day in and day out, children are diagnosed with cancer or going through harsh treatments. They are forced to push themselves beyond their limitations simply to survive.  Their finish line may never seem near. They probably do not understand why cancer happened to them, or why their sense of “normal” has changed from playtime with friends to hospital treatments with doctors.

Part of our mission at Endure to Cure is to help children bridge this scary abyss. Gracious supporters combine with the efforts of our Team Endure to Cure members to help these children endure their treatments with a little more vigor and energy by fulfilling some of their simplest wishes.  These tiny wishes usually result in huge emotional boosts.

Our most recent grant went to Theo, who is currently fighting cancer in a Chicago-area hospital.  In early 2011, The lives of Theo and those around him significantly changed when he was diagnosed with cancer.  When we found out that he is one of the biggest fans of both the Chicago Cubs and Chicago Bears, we knew a late-season visit to Wrigley to see the Cubs and a surprise from the Bears’ star quarterback Jay Cutler would help give him and his family the strength to keep fighting until cured.

His signed football from Jay Cutler arrived after an unexpected hospital stay and some particularly challenging days of treatment.  Theo and his family conveyed what an amazing welcome home gift this was for Theo during such a difficult time. And if pictures tell the story, we couldn’t agree more!

Thank you to all of our selfless donors and sponsors who supported our Team Endure to Cure members from around the world to make this possible.  If you are interested in becoming somebody’s hero today, click here to learn more!

Endure to Cure funded this “Bear Hug” via Bear Necessities in Chicago, IL.  BN’s “Bear Hugs” program supports cancer patients up to age 19 who face the many challenges that accompany the diagnoses and treatment of pediatric cancer.

My Lake Zurich 26.4k Marathon Swim–By Nuala Moore

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Category : Team Endure to Cure in Action!

Team Endure to Cure member Nuala Moore of Dingle, Ireland recently swam the Lake Zurich 26.4km Marathon Swim to both challenge her limitations and raise awareness for Endure to Cure’s contribution to the fight against pediatric cancer.  In this jaw-dropping post, Nuala recounts what it was like for her to swim such great lengths backed by a higher purpose.

The Swim of Self Transcendence: My Lake Zurich 26.4km Marathon Swim for Endure to Cure–By Nuala Moore

To take on any challenge is 100% belief in the thought that you will finish, genuinely I train to finish. Add to the mix the power to inspire and make a difference by raising awareness and funds for a wonderful cause with my fellow Team Endure to Cure members–that combination is an inspiring cocktail of awesome strength and belief, and here I am in Zurich, Switzerland.

Surrounded by bags, sachets of Maxim, bananas, chocolate for sweet taste, figs, jelly sweets if my throat gets raw, gels, High 5 powder which has high electrolytes when I need a quick fix and some protein mix,  turkey in case I need to chew, some currant bread, some food replacement dairy milk. I will drink between 10- 15 litres of water. I might eat all or none of this but if I have all then I have no reason to stop.  Frances and I sat and chatted about my feeding plans.

Open water swimming differs from a lot of sports in that we need a crew-someone who knows our form, our stroke, our capacity to continue, a good crew just knows, most importantly in the unlikely event of an incident someone who can make the call. If anything happens I’m face down in the water so Frances (my crew member) knows my every mood!  It is also all about preparation!  The night before, Frances prepared enough nutrition for me for up to 14hrs of swimming.

The atmosphere at the start was a testament to the organisers, a sense of personal journey. My initial strokes were slow and adjusting to a day in fresh water.  I stopped every 30 minutes for 20 secs, feeding was a challenge as it was difficult to stay above the water. I had practiced fast feeding and Frances knew to give me a five minute to feed warning; it allows us to push knowing there was a drink coming.  My plan was to reach the 6km mark in 2hrs, etc. By the time I reached the 6km mark at 2.15mins I had only stopped 1min-30secs so I rewarded myself with a minute stop. The rain had started to pour down, the lake calms with the rain so for me it was beautiful-for Frances she was crouched under the tarpaulin with a torch trying to mix the next feed. She had a really tough day.

In lakes my body position is underwater without the buoyant salt, so I was raising my arms higher to clear the water than. At 7 hrs the pain in left arm was cruel; a searing stab cut through the muscle each time I lifted it over my head. It is one thing to be aware and another to entertain it-it can mean nothing, I asked for 2 soluble pain killers. Finishing is all that I think about. There is too much work gone into today, too much sacrifice. I have cried into my goggles before, I can’t cry and swim, so I repeated “suck it up, dumb it down”. My thoughts went to my friend Fiona who had passed away in June from Cancer, a phenomenal swimmer. She would have given anything to be here today, she had smiled through so much pain just to live, let alone to achieve.

“This is nothing-pain will pass” I mantra’d as my bubbles soothed my breathing.-The boat came close and as it turned, the engine blasted some petrol, being so low in the water; I couldn’t avoid it as I swallowed a mouthful of petrol fumes. I signalled to Frances, I got water, put a boiled sweet in my mouth and continued to swim. I couldn’t control it; I threw up projectile, losing a lot of liquid.

Getting sick underwater is very difficult and I was not allowed hold onto the boat for assistance. Frances was mixing dioralyte and high intensity electrolytes to try to prevent any major loss of fluids. For the next hour I stopped every 20 minutes, monitored the amount of times I pee’d and the amount of vomit and forced that volume of liquid back in at different intensities of sugar. I settled back into my regular feeding, but I was still peeing huge volumes and my head was pounding so my body was showing signs of dehydration. Frances included maple syrup and salt in my next drinks. Having a friend who will neither entertain nor allow anything to happen is invaluable. Frances panders to nothing.

At 9hrs I felt that I was over the worst and though I had spent 90 minutes only covering 2 km I was starting to feel strong again. This was my first time swimming 9 hrs and from now on I was swimming further than I ever had. Endurance is all about highs and lows and the cycle is ongoing. As athletes we are so privileged to make all our efforts count, to highlight the challenges that others face, to inspire and to raise awareness just from doing what we love. Endure to Cure is a wonderful group of athletes with supreme standards of adventure who all push to redefine their limits and in our own battles, we inspire each other and raise much needed funds to fight pediatric cancer.. I watched my fingers drift off to the darkness and drifted into a slumber, taking the benefits over the pain.

My boat indicated me in so I turned towards the shore and continued rotating. Suddenly aware that the boat was not beside me I looked up.

“Hey I’m over here?” I shouted.

“Oh that’s Tina Turner’s house” my pilot yelled out.

“I’m going to Zurich..!” I screamed back feeling an automatic frustration.

“You’re ten hours in-will you hurry up!” Frances shouted-“Zurich is just ahead”

I was swimming for ten hours, I had not stood up or breathed freely for ten hours and I had not lifted my goggles off my eyes once but I was scared as my seal was perfect airtight. I wanted to see Zurich but it really didn’t matter I’ll get there when I get there.

“You’re in 3rd place” I heard a shout “That boat is in second-Go get it”

I lifted my goggles, I broke the seal; I needed to see what I was chasing. Praying that the goggles wouldn’t leak I pushed hard and I couldn’t believe how strong I felt as I dug deep into the water-I reeled in that boat and remember so vividly the faces of her crew as I drove my arms into the water, watching her arms and knowing that I was so much stronger after ten hours than she was. I eased out and couldn’t believe how competitive I felt…I don’t remember any more pain, each stroke reached to faces of so many who would love to have this moment-My mind had anesthetised all feelings even though I could not see Zurich, I was 2nd, I had never believed that I could be 2nd.

At 12hrs and one minutes I walked up onto the steps at Zurich. I can’t say that I was shattered; I was tired but not exhausted. I can’t imagine how hard it was for my crew just sitting on a seat on a small boat for 12 hrs.

I felt so proud of me, so privileged to be a fighter and so grateful to have so many people who believe in me. Life is all about stepping up to the plate. This was more purgatory than hell, but as fights go it was a street fight, 12 hrs of getting slapped about the head. The niggles were juvenile-just shows our powers and onward we march to the next challenge-and it’s soon!!!!

Chicago’s Blue Man Group Helps Emily Overcome the Cancer Blues!

Category : Small Miracles

Like most kids twelve years of age, Emily loves to hang out with her friends, play basketball, and learning how to play musical instruments (she is already playing the piano and french horn!).  Similarly, she does not like to get stressed out about school or going to the doctor or the hospital.  This past summer, her carefree life took a turn when she was diagnosed with a brain tumor. Despite the challenges, Emily courageously continues to do the everyday things she loves to do as well as attend school while undergoing her treatments.

Part of our mission at Endure to Cure is to help children bridge the scary abyss of harsh cancer treatments with inspiring experiences to help them reach their own finish line–a cure for their cancer. Gracious supporters combine with the inspiring efforts of our Team Endure to Cure members to help these children endure their treatments with a little more vigor and energy by fulfilling some of their simplest wishes.  These tiny wishes usually result in huge emotional boosts.

Our most recent grant went to Emily in Chicago, IL.  Her dream was to ride in a Hummer limo with her friends and family and watch the Blue Man Group. Emily reported that her favorite part of her Bear Hug was just forgetting bout her cancer and treatments and simply feeling like a kid again.  She also loved coming out of the Blue Man Group show and feeling like a rock star because a lot of people from the show swarmed the limo!

Her family said, “This experience was awesome! It meant the world to Emily and she felt so special. She was so excited! She has been through so much. Watching her enjoy the experience was such a great feeling. The whole experience from start to finish was amazing and Emily loved it. The limo driver rolled out a red carpet for them to walk on before they got in.”  This was an event Emily surely will remember and help give her inspiration to keep fighting with hope to someday be cancer-free.  It also puts her family more at ease seeing her so radiant.

Thank you to all of our selfless donors and sponsors who supported our Team Endure to Cure members from around the world to make this possible.  If you are interested in becoming somebody’s hero today, click here to learn more!

Endure to Cure funded this “Bear Hug” via Bear Necessities in Chicago, IL.  BN’s “Bear Hugs” program supports cancer patients up to age 19 who face the many challenges that accompany the diagnoses and treatment of pediatric cancer.

Disney Star Selena Gomez Adds Hope to Emily’s Cancer Treatment!

Category : Small Miracles

It was the first Sunday of April when the family noticed Emily was short of breath while playing basketball. The straight-A second-grader’s family took her the hospital for tests for possible asthma, but a CT scan only revealed a far worse situation. Emily had a tumor bigger than a softball in her left lung. It quickly collapsed her left lung and shifted both her heart and airway, leaving her breathing only with 20% of one lung.

Emily’s mom refers to her daughter as her “little rubber bouncing ball.” Whatever the challenge or situation, she tends to bounce back and keeps on moving. “That’s what she is. She’s 20 pounds underweight,” Emily’s mom said. “She is a stick. Her legs look like toothpicks, and that doesn’t slow her down. She does not care that she is bald; she keeps bouncing back.”  Even as she battles a diagnosis of stage III T-cell lymphoblastic non-Hodgkin’s lymphoma, this 8 year old is bouncing her way through chemotherapy and on to recovery…and since our Team Endure to Cure members have been out raising a sweat on her behalf, now she is stopping to hang out with celebrities along the way!

Emily and her family were treated to a limo ride, concert and backstage meeting with her idol, Selena Gomez. Meeting the Disney Channel starlet couldn’t have made Emily happier, said her mom. “She felt so special being in a limo, meeting a star. It’s every girl’s dream.  Emily is an angel. I feel like she is an angel walking among us. She brings out the good in people; she is so pure,” said her mom. “She just has the best heart in the world, and she inspires me every day. She gives me the strength.”

Thank you to all of our selfless donors and sponsors who supported our Team Endure to Cure members from around the world to make this possible.  If you are interested in becoming somebody’s hero today, click here to learn more!

Endure to Cure funded this “Bear Hug” via Bear Necessities in Chicago, IL.  BN’s “Bear Hugs” program supports cancer patients up to age 19 who face the many challenges that accompany the diagnoses and treatment of pediatric cancer.

Team Endure to Cure Takes on the Chicago Marathon!

Category : Team Endure to Cure in Action!

Endure to Cure Pediatric Cancer Foundation wishes its Team Endure to Cure members who are running the 2011 Bank of America Chicago Marathon on October 9, 2011 the best of luck in finishing their exciting journey to the finish line of this world class event.  We would like to thank not only Elevate Studios–Chicago’s premier multimedia agency–for making our cause possible, but also the volunteers around the world who have helped us succeed; our cause does not exist without you.

Team Endure to Cure runners:

Teagan Fights Cancer with Belle and the Beast

Category : Small Miracles

Teagan Grace first said hello to the world on August 4, 2005. She loves ballet and gymnastics (she calls it “nastics”) and enjoys playing outside. Unfortunately, being diagnosed with and battling cancer from an early age has limited her ability to enjoy what most kids her age enjoy and take for granted.  But Teagan is beginning to return to doing what she loves: playing with her friends, saying her colors, and having fun at school.  We are glad we were able to help her get back to the basics of being a kid!

Teagan’s Bear Hug was attending a production of Beauty and the Beast, complete with a meet and greet with Belle and the Beast! Her parents wrote about how fulfilling this wish helped make the hard times just a little bit easier:

“Teagan was so excited to see the play, she even wore her very own Belle dress! Some of Teagan’s birthdays have been spent in the hospital, so getting the chance to have a real birthday is extra special for us. Before we left the house to go to the play, Teagan saw the picture of her birthday from last year. She pointed to the picture and said “then sick” then she touched her Belle dress and said “now better.” (That one made Dad cry) We will never forget this birthday. Thank you!”

Thank you to all of our selfless donors and sponsors who supported our Team Endure to Cure members from around the world to make this possible.  If you are interested in becoming somebody’s hero today, click here to learn more!

Endure to Cure funded this “Bear Hug” via Bear Necessities in Chicago, IL.  BN’s “Bear Hugs” program supports cancer patients up to age 19 who face the many challenges that accompany the diagnoses and treatment of pediatric cancer.

Hannah Gets All Shook Up at Graceland!

Category : Small Miracles

While people often debate whether or not Elvis is still alive, if you ask Hannah–who was one of the most recent recipients of a Bear Hug–there is no debate that his music still has the power to put a smile on her face as she battles cancer.  Let’s here what she has to say after she fulfilled her dream of visiting Elvis’ Graceland!

“Hi, my name is Hannah and I am 7 years old.  I have SEVEN brothers and sisters! My Bear Hug was a trip with my family to Graceland in Memphis! (I am a BIG Elvis fan)  My favorite part of the whole trip was singing Elvis songs! My Bear Hug made me feel really good.

While these grants are intended to make the life of a child better, they also usually have a positive impact on their entire family.  Here is a a note from Hanna’s mom to explain:

“We loved Hannah’s Bear Hug. We were so glad we had the VIP pass – the lines were soooo long & Hannah would have never made it through the day without VIP treatment!
This trip meant a lot to Hannah. She just got into Elvis, so it was fun to show her where he lived & how he dressed.

During our cancer process we’ve had many ups and downs.  When Hannah was on chemo she very depressed so when she is off of it, we live life to the fullest and simply enjoy every moment.
Thank you, thank you for allowing us this memory. It was a blast and I will treasure the time we had together there.

Blessings for all that you do for our cancer children!”  ~Tanya (Hannah’s Mom)

Thank you to all of our selfless donors and sponsors who supported our Team Endure to Cure members from around the world to make this possible.  If you are interested in becoming somebody’s hero today, click here to learn more!

Endure to Cure funded this “Bear Hug” via Bear Necessities in Chicago, IL.  BN’s “Bear Hugs” program supports cancer patients up to age 19 who face the many challenges that accompany the diagnoses and treatment of pediatric cancer.

Issac Fights Brain Cancer…With Furniture!

Category : Small Miracles

Week in and week out, members of Team Endure to Cure have made a choice to push themselves beyond their perceived limitations to reach the finish line of endurance events of all kinds.  They never ask why they are doing what they do. Day in and day out, children are diagnosed with cancer or going through harsh treatments. They are forced to push themselves beyond their limitations simply to survive.  Their finish line may never seem near. They probably do not understand why cancer happened to them, or why their sense of “normal” has changed from playtime with friends to hospital treatments with doctors.

Part of our mission at Endure to Cure is to help children bridge this scary abyss. Gracious supporters combine with the efforts of our Team Endure to Cure members to help these children endure their treatments with a little more vigor and energy by fulfilling some of their simplest wishes.  These tiny wishes usually result in huge emotional boosts.

Our most recent grant went to Issac, who is now fighting brain cancer in a Chicago-area hospital.  Well…let’s just let him tell the story:

“Thank you so much for giving me a Bear Hug to get a loft and and a couch.  My favorite part of my Bear Hug was when I helped build my loft.  My loft and my couch make me really happy.  It also made my, Ivy, happy that she was able to sleep on the couch in my room.  Love, Issac”

Fulfilling these small but ever-so-important wishes of a child also has a major impact on their parents.  April, Issac’s mom, is no different:

I think it is truly amazing that you were able to help put a smile on my son’s face!  The past month and a half since Issac was diagnosed with brain cancer has been very hard for him, both physically and emotionally.  Issac’s days are normally filled with doctors, procedures and treatments.  Issac’s Bear Hug not only gave him something to look forward to pick out and go shopping for, but also an excitement to show it off to all of his friends.  He now eagerly goes to sleep each night even though the next day will be filled with more treatments.  Thank you for your generosity!  With much gratitude, April”

Thank you to all of our selfless donors and sponsors who supported our Team Endure to Cure members from around the world to make this possible.  If you are interested in becoming somebody’s hero today, click here to learn more!

Endure to Cure funded this “Bear Hug” via Bear Necessities in Chicago, IL.  BN’s “Bear Hugs” program supports cancer patients up to age 19 who face the many challenges that accompany the diagnoses and treatment of pediatric cancer.

Grayson’s Water Park Outing Helps Get His Mind Off Cancer!

Category : Small Miracles

Born on October 10, 1998, Grayson was a healthy baby boy. Shortly before his second birthday his world changed and he was diagnosed with Leukemia.  Despite his diagnosis, Grayson remains a happy kid. He enjoys all things Thomas the Train and having fun with his family. Grayson chose a trip to Key Lime Cove Water Park as his Bear Hug and help get his mind off his harsh cancer treatments. The following letter is from Sara, Grayson’s mom:

“What an amazing trip! I wanted to thank you for a wondrous mini vacation to Key Lime Cove. We enjoyed so many memories as a family (and happy tears). To give you an idea of how memorable this has been for us, here are some highlights:

  • Upon entry our 5 yr old stated “This is like paradise!” and Grayson (2 yrs) shrieked “Oh my gosh!”
  • The unexpected touches like balloons on our door brought tears to my eyes.
  • Grayson looked up at THE tallest slide and declared “That is MY slide”. yeah, right-some day buddy! As for the other slides his size he could not get enough! We had to bribe him to take breaks with ice cream and candy!
  • The kids were told yes to almost anything they wanted and loved every bit of it (and so did my husband and I).
  • And the icing on the cake (thanks to the balloons as motivators) our almost 1yr old walked all over that hotel room the whole trip. Priceless!
  • Finally, my husband and I joked that it was NICE to see a “bracelet” other than a hospital band on his ankle.

A million thank yous! Our sincere gratitude! “  ~Grayson’s Mom

Endure to Cure funded this “Bear Hug” via Bear Necessities in Chicago, IL.  BN’s “Bear Hugs” program supports cancer patients up to age 19 who face the many challenges that accompany the diagnoses and treatment of pediatric cancer.

Hope for a Side Effect-free Future for Children With Cancer

Category : Pediatric Cancer Awareness

(ARA) – When a child with cancer begins treatment, parents have the hope that their child will be cured and will live a long, healthy life. The significant advances being made in cancer treatment are allowing many children to survive well into adulthood, which is very good news.

At the same time, however, some life-saving treatments can result in short- and long-term side effects. Long-term childhood cancer survivors also can experience “late effects” – medical problems that surface many years later as a result of their treatments.

For 3-year-old Kaiden Brennfoerder of Plano, Texas, cancer struck without warning. His parents found him in the throes of a grand mal seizure on a Thursday morning and just four days later, doctors removed a golf-ball-sized cancerous tumor from his brain. His official diagnosis came a week after surgery. “His doctor didn’t want to do chemotherapy and radiation at the same time because he was so little,” says Amy, Kaiden’s mother. Kaiden had four months of chemotherapy before doctors were ready to begin radiation treatments.

However, that did not sit well with Kaiden’s parents, Brian and Amy. They “heard horror stories about the side effects of radiation therapy on children,” Amy recalls. When a friend in Oklahoma who works with children undergoing cancer treatment told Amy about proton therapy, the Brennfoerders began learning as much as they could about this alternative to radiation. Ultimately, with the support of their oncologist, the family decided on proton therapy for Kaiden.

“Our oncologist said it was just as effective as (traditional radiation), with the potential of having less severe side-effects later in his life,” Amy says.

For all its benefits, X-ray radiation therapy not only damages cancerous cells, it also can damage healthy tissue. Of particular concern is the damage to critical organs near the site of the tumor. X-ray radiation can be especially damaging to children and young bodies that are still growing. Depending on the site of the tumor and the pathway of the radiation, side effects for children can include loss of vision or hearing, a drop in IQ, memory problems, developmental delays, and even stunted growth. Late effects that might surface years later can include heart, lung, liver or kidney problems; bone thinning or a recurrence of the cancer or a secondary tumor.

Proton therapy is particularly appealing to parents who want to minimize the side effects of radiation therapy for their children. Like standard X-ray radiation therapy, proton therapy kills cancer cells by preventing them from dividing and growing. Unlike X-ray radiation, protons deposit most of their energy directly in the cancer tumor, meaning children can receive higher, more effective doses, with less damage to healthy tissues. Studies have shown proton therapy to be effective in treating a number of types of cancer in children and adults, including brain, head and neck, prostate, central nervous system and lung, as well as tumors at the base of the skull and along the spinal cord.

Although proton therapy has been successfully used to treat cancers for decades, many doctors remain unaware of it because only a handful of centers in the U.S. offer the therapy – nine in all, with a new ProCure center having just opened in suburban Chicago. It took a knowledgeable friend who happened to live near the ProCure Proton Therapy Center in Oklahoma City to bring the treatment to the attention of Kaiden’s parents.

Over six weeks, Kaiden received 30 proton therapy treatments at the Procure Proton Therapy Center in Oklahoma City. Though the family needed to temporarily relocate to receive the treatment, Amy says the trip was well worth it and Kaiden did extremely well.

“He did fantastic,” Amy says. “He kept his energy level. He was just a happy, normal little kid. He tolerated the treatment very well. It took him a week or so to warm up to it, but by the end he was saying ‘I’m ready to go to ProCure now’ when it was time for his treatment.”

A little more than six months to the day of his life-altering seizure, Kaiden completed his proton treatments without side effects except for a tiny triangle-shaped bald spot where the proton beam entered his head.

“I truly believe that within the next five years, proton therapy will be the mainstream treatment for cancer,” Amy says. “We would absolutely, 100 percent tell other parents to look into proton therapy for their children.

To learn more about the advantages of proton therapy, visit www.procure.com.